Privacy Notice

As a charity, In Sue’s Name, we collect and hold personal data which may directly or indirectly identify you (together “personal information”). We process this personal information for a range of purposes relating to our charity activities. We are also the data controller of your personal information.

We take your privacy seriously and we are committed to protecting personal data that we receive from you. This privacy policy explains In Sue’s Name’s policies and practices regarding its processing of your personal data, and explains your privacy rights under applicable privacy and security laws.

This Privacy Notice sets out why we collect your personal information, what information is collected and how it is processed. Throughout this Privacy Notice we use the term “processing” to cover all activities involving your personal information, including collecting, handling, storing, sharing, accessing, using, transferring, securing and disposing of information.

  1. Why do we collect your personal information?

In order to advance our objectives, we need to process certain personal information about you for the purposes set out below:

Marketing/managing communications: to inform you about our activities and fund-raising opportunities. This will only happen if you have agreed to us contacting you in this way;

Growth: by sharing updates of our activities we seek to raise awareness about ourselves and our key objectives, thereby raising more funds for brain cancer research; and

General Activities: peripheral processing of your personal information in the course of advancing our objectives.

The legal basis on which we process your personal data in these circumstances is our legitimate interest to (i) increase awareness via direct marketing and/or otherwise about our fundraising and (ii) increase awareness about brain cancer research generally.

Some examples of where we have a legitimate interest to process your personal data are where we contact you about our work via email, conduct high level data analysis to better understand who our supporters are,  or for complying with guidance from the Charity Commission.

Where we use your personal data to achieve such legitimate interests, we consider and balance any potential impact on you (both positive and negative), and your rights under data protection law. We will not use your personal data for activities where our interests are overridden by the impact on you, for example where use would be excessively intrusive (unless, for instance, we are otherwise required or permitted to by law).

  • What personal information might we process?

Below are some examples of the type of personal information we may process about you. Generally, we collect personal information directly from you in circumstances where you provide personal information to us. However, in some instances, the personal information we collect has been inferred about you based on other information you have provided to us, through your interactions with us, or from third parties.

Your Personal Information

– Personal details such as name, address and date and place of birth, personal email addresses and phone numbers;

– Correspondence with or about you, for example letters to you about involvement in a specific event; and

– Any other personal data that you disclose to us in relation to events, such as dietary requirements, physical disability, comments, or requests.

  • Who do we share your personal information with?

We do not share your details with any third parties.

  • How do we protect and retain your information?

Our systems are password protected.

We have implemented security measures to protect the personal data that we collect, consistent with applicable privacy and security laws. These security measures are designed to prevent unauthorised access, improper use or disclosure, unauthorised modification, and unlawful destruction or accidental loss of your personal data.

We retain your personal data only for as long as is necessary for our relationship with you. We do not collect more personal data than we need to fulfil our purposes stated in this privacy notice, and we will not retain it for longer than is necessary.

  • Your Rights

At any time you may withdraw any consent that you have provided to us to process your personal data. Additional rights are set out below.

Access, Correction and Deletion

You are entitled to see the information we hold about you.

You can make changes to your personal information where it is incorrect or ask to delete your personal information.

Inquiries, objections and complaints

Where we rely on your consent to processing your personal information you have the right to withdraw your consent to processing of your personal information at any time. Please note, however, that we may still be entitled to process your personal information if we have another legitimate reason (other than consent) for doing so.

If you have any queries about this Privacy Notice or your personal information generally, including questions about accessing your personal information or correcting it, you should contact us.

You have the right to lodge a complaint with the data protection regulator if you think that any of your rights have been infringed by us.

Direct Marketing

We may use your personal information to inform you about our activities that might be relevant to you. This will only happen where you indicated to us via your marketing preferences that you wish to be contacted in this way. You have the right to object to direct marketing.

  • Changes to this Privacy Notice

We may make changes to this Privacy Notice from time to time and will inform you when the Privacy Notice is updated.

  • Links to third party sites

Our website may include links to other sites operated by third parties. We are not responsible for information on these sites, nor for services or products offered by them. Use of such sites, including transmitting your personal data to them, is at your own risk. You should check the privacy policies (and other applicable terms and conditions) of these third-party sites.

You give, they live

The more we raise, the more research we can do, and the sooner we can eradicate this terrible disease…